Eleven years ago Terry was diagnosed with myelofibrosis, a very rare condition where the bone marrow does not function normally. Here is a link to a description of the condition: http://www.mayoclinic.com/health/myelofibrosis/DS00886. Over the past year her condition has progressed significantly to where she has lost 40 pounds and her spleen has increased dramatically. One doctor stated that her spleen was the size of a football. Thankfully she has had the strength to laugh at the situation with pregnant jokes!
After weighing the benefits and risks the family has decided to move on with a bone marrow transplant, the only chance for a cure. The procedure itself is a very risky and long process. It will require months in the hospital followed by many more months of close monitoring near the hospital and a detailed medication regimen the rest of her life.
The first step which we are beginning this week is removing the spleen. The doctors state that they would not recommend this if she was not going through with the transplant. Terry will be getting the best care at UCSF, however there has never been a case like this one. The surgeon, who is supposed to be one of the best said that this will be a challenge, but she likes a challenge.
We are very grateful for everyone who has been praying thus far and thank you for continuing to pray as we start the next step in this journey.
About Terry
- The Wilsons
- Terry is a terrific daughter to Glen and Maxine, and a wonderful wife to Dan. She has 5 children and is an amazing grandma to her 6 grandchildren. We all love her very much.
1 comment:
Terry and Dan,
Debbie and I will have you in our thoughts and prayers as you go through this process. Hang in there!
John and Debbie Dooley
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