Everything is going pretty well after a couple of really long clinic days. Friday Terry was given a blood transfusion and also the IV medication so they did not get home from the hospital until 11 at night! The doctors have decided to take her off of one of the immunosuppresants so now they are closely watching for graft vs. host disease- let's hope for the best and pray that she stays healthy. We'll keep you posted on her progress- today is day 61 and the first 100 are the most critical. Thanks for all of your thoughts and prayers.

Today we got the results of the liver and marrow biopsies. It did not look like graft vs host disease or myelofibrosis so that is a good thing- the doctors believe that the elevation in her liver enzymes must be from the medications and so she is getting an IV infusion of another medication on clinic days. The hemoglobin was 8.8 today so she will probably get a blood transfusion Friday. Overall things are going well-we'll let keep you posted!

Terry is out of the hospital but we don't have all of the results yet. She had to go back today for blood work and again tomorrow- hopefully they will give her more information on the biopsy results at that time. We'll keep you updated as we learn more. Thanks for your thoughts and prayers.

Back in the hospital

Today Terry was readmitted to the hospital so that a few more tests can be run to determine why her liver enzymes are still elevated. There are 3 possibilities: the medications she is taking may be the cause; this may be a sign of graft vs. host disease; or it could be from the myelofibrosis. Tomorrow they are doing a bone marrow biopsy and possibly a liver biopsy- they may have to do this the following day depending on scheduling. There is plan for each complication- if it is the medication they will change to an IV form infused at the clinic twice a week. If it is graft vs. host they will begin to treat that and if it is the myelofibrosis they will give a mild course of chemo on an outpatient basis which the doctor was considering doing anyway. We will keep you posted when we know more. Thanks again for everyone's thought and prayers.